Goals for 2018 *[Plus HUGE Announcement]*

Goals for 2018 *[Plus HUGE Announcement]*

Every year I set goals for myself. They aren’t so much resolutions but more so accomplishments I’d like to reach in the New Year. Sometimes I meet all of what I set out toward and other times I fail miserably. These include any type of goal from small to big, simple to complex. For me, it’s about setting them and working toward it.  My goals range vastly. This year I am focused bettering the quality of my life. I am determined…

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Going into 2018 with Continued Hope.

Going into 2018 with Continued Hope.

It’s 2018!! Let me jump right into my thoughts on 2017 & what I see for 2018… 2017 is kind of a blur for me. A lot changed and I was challenged in ways I never even imagined. I lived in constant pain and depended on people more than I would of ever liked. I always prided myself on independence and good health. Both of those things were stripped away from me. I was taught it was okay to need…

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Is Being Selfish Necessary with Chronic Disease?

Is Being Selfish Necessary with Chronic Disease?

Have you ever sat back and realized how selfish you are? No matter what you do, you have to think of yourself first, and then you can worry about others. For me, it feels so foreign. I have always felt pride in being that person people can count on. The one that will always listen and be there however I can.  Now, it’s all about me, no matter how hard I try to make it not be. It took me…

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Is It Possible To Be Chronically Ill & Thankful?

Is It Possible To Be Chronically Ill & Thankful?

I am sitting here drinking the loveliest cup of coffee, enjoying the sounds of my fake fireplace, and reflecting on this passed year. I know most people do that around New Years but I always start around Thanksgiving leading into the New Year. This year has probably been one of the biggest learning experiences and test of my strength. It was a year of fighting for myself and advocating to figure out what was going on with my body. I…

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Learning to Celebrate Small Wins With Chronic Disease 

Learning to Celebrate Small Wins With Chronic Disease 

I feel like I continually write about the challenges of chronic illness. It’s often hard to see passed all the pain. How is it possible to be happy when your body is betraying you? It can be hard to celebrate any type of “win”. What normal person celebrates getting out of the house or taking a shower. Those are just things any regular person does. It’s easy, right? For you or me those are wins. That means we conquered something…

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Learning to Not Be Ashamed of My Wheelchair

Learning to Not Be Ashamed of My Wheelchair

I’ve told myself on repeat to not be ashamed of my wheelchair. That it’s okay, and if anyone has a problem it’s their issue not mine. I stand by that, I really do. My feelings morph into anxiety and resentment when people I know personally see me in it. It’s my little secret I like to keep to myself. The look on their face is so disheartening.  They almost seem fearful, completely shocked, and mostly confused. I know I have…

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Where Have I been….

Where Have I been….

I don’t mean to disappear. A lot of the times I have to choose between resting, spending time with my family, or blogging. I work hard to manage my energy and time. If something has to give it’s going to be my blog. Not because I don’t love it, this is my favorite thing to do. To have the ability to communicate with others is such blessing. This is just mine, I don’t do it for my family or to…

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Dealing with The Constant Change with Lupus

Dealing with The Constant Change with Lupus

This weekend was a whole new experience for me. Many of us with chronic disease try to fight for any independence possible. Whether it’s going to the store alone or indulging in our favorite hobby. I, for once, had to let go of all reservations and recognize assistance was the only option. For the first time, my husband pushed me in my wheelchair. It wasn’t a rented or a temporary one. It’s actually mine, prescribed to me by my doctor,…

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Bonding with Others who Have Chronic Illness

Bonding with Others who Have Chronic Illness

Most of the time when I sit here I simply write what comes to my mind. I am not a professional in any sense. I am just a person who created an outlet because I felt alone. It’s not that I don’t have loved ones that care, it was more like they don’t understand. I feel lonely and isolated. They don’t mean to exclude me, they just don’t get it. That has caused so much anxiety within me. I felt…

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Three Tips To Help Deal with Lupus

Three Tips To Help Deal with Lupus

Let me start off by saying that it took a long time for me to feel like I could enjoy life again. Not because I didn’t want to, but because I didn’t know how to with all the pain I was in. There were so many days lumped together that became a blur. All I hoped for was my pain to ease and my mind to clear. Time after time I just wanted comfort. I hoped there would be a…

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