Learning to Celebrate Small Wins With Chronic Disease 

Learning to Celebrate Small Wins With Chronic Disease 

I feel like I continually write about the challenges of chronic illness. It’s often hard to see passed all the pain. How is it possible to be happy when your body is betraying you? It can be hard to celebrate any type of “win”. What normal person celebrates getting out of the house or taking a shower. Those are just things any regular person does. It’s easy, right? For you or me those are wins. That means we conquered something…

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Learning to Not Be Ashamed of My Wheelchair

Learning to Not Be Ashamed of My Wheelchair

I’ve told myself on repeat to not be ashamed of my wheelchair. That it’s okay, and if anyone has a problem it’s their issue not mine. I stand by that, I really do. My feelings morph into anxiety and resentment when people I know personally see me in it. It’s my little secret I like to keep to myself. The look on their face is so disheartening.  They almost seem fearful, completely shocked, and mostly confused. I know I have…

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Where Have I been….

Where Have I been….

I don’t mean to disappear. A lot of the times I have to choose between resting, spending time with my family, or blogging. I work hard to manage my energy and time. If something has to give it’s going to be my blog. Not because I don’t love it, this is my favorite thing to do. To have the ability to communicate with others is such blessing. This is just mine, I don’t do it for my family or to…

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Dealing with The Constant Change with Lupus

Dealing with The Constant Change with Lupus

This weekend was a whole new experience for me. Many of us with chronic disease try to fight for any independence possible. Whether it’s going to the store alone or indulging in our favorite hobby. I, for once, had to let go of all reservations and recognize assistance was the only option. For the first time, my husband pushed me in my wheelchair. It wasn’t a rented or a temporary one. It’s actually mine, prescribed to me by my doctor,…

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Bonding with Others who Have Chronic Illness

Bonding with Others who Have Chronic Illness

Most of the time when I sit here I simply write what comes to my mind. I am not a professional in any sense. I am just a person who created an outlet because I felt alone. It’s not that I don’t have loved ones that care, it was more like they don’t understand. I feel lonely and isolated. They don’t mean to exclude me, they just don’t get it. That has caused so much anxiety within me. I felt…

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Three Tips To Help Deal with Lupus

Three Tips To Help Deal with Lupus

Let me start off by saying that it took a long time for me to feel like I could enjoy life again. Not because I didn’t want to, but because I didn’t know how to with all the pain I was in. There were so many days lumped together that became a blur. All I hoped for was my pain to ease and my mind to clear. Time after time I just wanted comfort. I hoped there would be a…

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Is it Possible for Relationships to Survive Lupus?

Is it Possible for Relationships to Survive Lupus?

I was recently asked what has changed the most regarding my Lupus diagnosis. I replied “everything” because in reality that is the exact truth. There’s not a part of my life that hasn’t been touched in one way or another by this disease. I take medicine daily, I don’t go in the sun, I avoid being out of the house too long or at all, I lean on others more than I ever have, I lack energy, I eat completely…

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Lupus POOPUS, Finding The Positive

Lupus POOPUS, Finding The Positive

I have to say, I would of never taking this many leaps in my life if it wasn’t for Lupus. Uggghhhh, You ever get tired of hearing the name of your nemesis?? In my case it’s Lupus POOPUS. I know..I know such a clever play on words. That’s what happens when you have three kids and have to explain the challenges of poopy Lupus. Damn! There’s that word again! Before I even knew why I was experiencing so many issues I…

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Is Failure Our Chance To Learn?

Is Failure Our Chance To Learn?

There was a time in my life that I would say ” I failed, I quit, I can’t do it.” I’d basically sabotage myself with a single mistake. My thoughts went right into me not being good enough or somehow thinking I am not capable. I’m not even sure where that thought process came from but it was there… for many many years. It took for me to go through all these dang health issues to realize I wasn’t being…

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You Hurt Me, but I Will Get Through the Pain.

You Hurt Me, but I Will Get Through the Pain.

You hurt me, my heart will never be the same. You hurt me, now everything has changed. You hurt me, I’m not sure I’ll ever trust again. You hurt me, I need to love me instead. You hurt me, I won’t let you win. You hurt me, I’ll learn to be my own person. You hurt me, all my strength has been tested. You hurt me, I refuse to hold it in. You hurt me, I’m moving on carefully. You…

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